Every SMA record.
One calm place.
Caring for a child with Spinal Muscular Atrophy (SMA) means juggling neurologists, pulmonologists, physical therapists, and a mountain of paperwork. Unite brings every record into a single secure portal — so you can spend less time chasing files and more time with your family.
Built with families
Your feedback shapes Unite.
To ensure our platform truly helps SMA patients & caregivers, we're offering $100 for your feedback. Learn More
Take 3 Steps to Qualify — 1) Create an account. 2) Connect your healthcare provider. 3) Complete the feedback survey before August 31, 2026.
Why families choose Unite
Less paperwork. More presence.
All records, one portal
Pull records from hospitals, neurologists, PT, and pulmonology automatically — no faxes, no portals to remember.
Better appointments
Walk in prepared. Share a single secure link with any provider so they see the full picture in seconds.
Hours back each week
Stop digging through emails and binders. Unite organizes everything by visit, provider, and date.
Interview with Kenzie - Mother to a 6 year old child with SMA Type 1 that now uses Unite
In her own words
"I rode an elevator down to a basement. It was dark and dingy… I was like, wow — we're in 2026 and I am down here in a basement to get medical records."
"I love that I'm able to get all of his information, all his surgeries, and present them so clearly. It is just the biggest weight off your chest knowing it's so easily accessible."
Kenzie · Mom & caregiver to Blaise, age 6 · SMA Type 1
How the program works
Three small steps. A real impact for SMA families.
Total time: 20–30 minutes. Go at your own pace. Come back to finish anytime.
Create your free account
Submit your email and password to create your account. Then fill in some basic contact info to get started.
Takes about 3 minutes.
Connect a provider
Search for your provider and select it. You'll be sent to their portal to log in, grant Unite access, and choose what to share. We then import and analyze your records so you can view them in Unite.
Takes about 5 minutes.
Share your feedback
Schedule a quick phone call with our team to share what worked and what didn't.
Takes about 15 minutes.
$100 reward when you complete the program
We know your time is precious. As a thank-you for helping us build a better tool for the SMA community, you'll receive a $100 digital gift card after you connect a provider and finish the survey. This $100 feedback reward is available through August 31, 2026 — after that, you can still join Unite and use it free, but the reward will no longer be offered.
- No purchase or subscription required
- Use Unite free for as long as you like
- Your data stays yours — always
Built by a team that believes your records belong to you.
Unite Genomics is a health technology company on a mission to make patient data work for patients first. We started Unite after watching families spend more time fighting for their own medical records than actually using them with their care team.
We're focused on rare disease communities because they feel the broken system most acutely — and because the trust they place in us holds us to the highest standard. SMA families are our first partners; what we build with you will help everyone who comes next.
Our mission
Give every patient — especially those navigating rare disease — full ownership of their health story, in one place.
Why we started
Families managing complex conditions like SMA shouldn't have to be human filing cabinets. The system is fragmented; we're stitching it back together.
How we build
With patients and caregivers — not just for them. Every feature is shaped by real conversations with families like yours.
What is Spinal Muscular Atrophy?
Spinal Muscular Atrophy (SMA) is a rare genetic disease that affects the motor nerve cells in the spinal cord. Over time it weakens the muscles used for crawling, walking, sitting up, controlling head movement, and — in more severe forms — breathing and swallowing.
There are four main types (Type 1 through Type 4), ranging from infants who need significant respiratory support to adults with milder, later-onset symptoms. Thanks to newer therapies, outcomes are improving — but families still navigate a complex web of specialists, therapies, and records.
1 in 11,000
babies born with SMA
~25,000
people living with SMA in the U.S.
1 in 50
people are genetic carriers
4
main types (Type 1–4)
Sources: Cure SMA, NIH National Institute of Neurological Disorders and Stroke (NINDS).
Common questions
Ready to bring it all together?
Join hundreds of SMA families already using Unite. Create your free account in under two minutes and start earning your $100 reward.
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